Friends, family raising money for 2nd bone marrow operation 4-year-old Crofton boy is in a Boston hospital

January 13, 1998|By Tanya Jones | Tanya Jones,SUN STAFF

Relatives, neighbors and friends of a 4-year-old Crofton boy are trying to raise $150,000 to pay for a second bone marrow transplant and family expenses associated with the operation.

David Raymond had the surgery in November at Children's Hospital in Boston and is still there in intensive care, said Dianne Hoffman, coordinator of the fund-raising campaign. His parents, Susan and Chris Raymond, are with him.

David suffers from Hurler's Syndrome, a genetic disorder. Symptoms include heart disease, deafness, cornea clouding and mental retardation. Most children with the syndrome die by age 5, Hoffman said.

"It's a life-and-death situation," said Hoffman, a neighbor of the Raymonds who agreed to head the fund-raising effort. "I look at the grace and the courage and the dignity and the intelligence that they have shown."

Neighbors, relatives, church members, local businesses and strangers have raised more than $20,000 for David since November, she said. Volunteers are planning a dance, bowling tournament and other events.

Under an arrangement with the Children's Organ Transplant Association Inc. (COTA), based in Bloomington, Ind., all money raised will go toward his expenses.

The association provides containers to collect change at cash registers at local businesses, stationery with the association letterhead to use in soliciting donations, and advice on fund raising. All donations are tax-deductible because the account has been established by the transplant association, a federally recognized charity that also tracks the funds and ensures they are used for legitimate expenses, said Mark Lauer, director of campaigns for the organization.

COTA uses corporate donations, bingo proceeds and interest on money in clients' accounts to cover administrative costs so that all local donations go toward the individual patients, Lauer said.

Tax-deductible donations may be mailed to: Signet Bank, 1623 Crofton Center, Crofton 21114; or made in person at any Signet branch. Donors should make checks or money orders payable to "COTA for David" and write account number 222-4032-926 in the memo space.

Pub Date: 1/13/98

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